I’m appealing to readers to get involved and show their support for The Satachi Medical Innovation Bill before the consultation ends on April 27. If passed, the Bill will help doctors, surgeons and clinicians prescribe, with their patient’s consent, safe and effective innovative treatments and cures for fatal diseases.

As a dad of a young boy with the fatal disease Duchenne, I am passionate about making this Bill a reality.

The Government supports the Bill but will only make it law if we, the public, demand it. They need to be overwhelmed by the interest from individuals, businesses and doctors that want to have a framework in place that allows them to innovate and save lives, beyond just using the standard care that may well not have changed in the last 40 years.

I want boys like Harrison and all across the UK diagnosed in the years to come to have a chance at life.

One in 17 of us will be diagnosed with a rare disease, 53 per cent of all cancers diagnosed are rare. That’s millions of people across the UK.

Diseases touch every single person and we all deserve the right to the very best efforts and most noble intentions of our medical innovators. We’re asking everyone to take a moment to read the Bill, share this knowledge with family and friends and empower a generation of people to take control of their own health.

Please follow us on Facebook and Twitter and share the #Saatchibill to help spread the word before the end of April. And visit http://www.change.org/en-GB/petitions/jeremy-hunt-department-of-health-14-days-to-change-medical- history to sign the petition.

Alex Smith, Father-of-two, Founder of Harrison’s Fund and co-founder of Duchenne Alliance.